At the Heart4Data Consortium meeting, last Wednesday 12 April, stakeholders and interested parties were updated on the steps taken and future of the various work packages within this consortium.
In the introduction, consortium leaders Folkert Asselbergs and Dennis van Veghel indicated that both implementation and coordination with partners are well under way. In fact, researchers are already asking whether the developed infrastructure for registration-based clinical trials (RB-RCT) can be used for other registrations in the near future, and discussions are ongoing with partners such as DCVA, Health-RI & NVVC about further embedding in policy. Other speakers and subjects:
Rik van de Kamp
- Progression Heart Failure (HF) registry
- Growth participating hospitals: from 24 to 31
- TITRATE-HF in synergy with registry and RELEASE-HF
Jeroen Schaap
- Introduction SELEQT-HF: proof of concept study RB-RCT infrastructure
Jeroen Schaap
- Introduction SELEQT-HF: proof of concept study RB-RCT infrastructure
Dick Schuurman
- HF-registry maintained by NHR
- Introduction ‘MijnNHR’ for upload, processing and feedback/benchmark
Saskia Houterman
- Reuse of data
- Progress on linkage with CBS, DHD, Vektis & Pharmo
Alicia Uijl
- Mentorprogram
- Education & events
- Fellowship & calls
