This paper, recently published in the Netherlands Heart Journal, describes how the Nederlandse Hart Registratie (NHR) developed an integrated patient-centered cardiac care registry over a period of five years. This achievement was accomplished by collaborating with mandated cardiologists and cardiothoracic surgeons in the so-called registry committees, who systematically evaluated the quality of care using real-world data. As a result, the NHR now comprises six committees, achieves data completeness of over 95%, and involves the participation of 71 Dutch hospitals. Read the full article here.
The Heart4Data consortium meeting on 21 January 2025 provided an update on the development of Heart4Data’s infrastructure and the first registry-based studies …